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National Hemophilia Foundation Turns 75

The U.S. advocacy organization for bleeding disorders plans a year-long anniversary celebration and will debut a new name this summer.

Story
75 Years of Support, Advocacy, Discovery, Hope, Community, Legislation, Research, Treatments, Chapters

The National Hemophilia Foundation (NHF) will mark its 75th anniversary this year with special programming and a name change.

NHF, a nonprofit dedicated to serving patients who have inheritable bleeding disorders such as hemophilia and von Willebrand disease, calls its anniversary celebrations “The Red Thread” because the campaign ties together the nonprofit organization’s history and achievements through the years.

See the timeline that traces NHF’s 75-year history.

The Red Thread also will include regional events, celebrations of the important work by NHF’s expansive network, history-themed webinars and special content on HemAware.org.

NHF President and CEO, Dr. Leonard A. Valentino says that this celebration isn’t just about reflecting on the past. It’s also a time to look forward to the next chapter with an elevated focus on inclusion.

“The more inclusive we become for all bleeding and blood disorders, the more progress we can make in creating an equitable health care system for our community’s vocal and passionate advocates,”  Valentino said in a press release on the foundation’s website.

Toward the end of the summer, NHF will publicly reveal a rebrand that will introduce a new organizational name and logo that is inclusive of the entire community.

“This special page turn in NHF’s story comes at the right time,” said Dawn Rotellini, NHF’s chief operating officer. “This anniversary honors the organization’s history while finding the future.”

CSL Behring, a global biotech leader that develops treatments for bleeding disorders, also celebrates NHF’s accomplishments and values the nonprofit as a key partner in building a better future for patients.

“As the National Hemophilia Foundation celebrates its 75 years of research, advocacy and leadership, CSL Behring is humbled to collaborate and learn from this impactful organization,” said Michael Ruggiero, CSL’s Senior Vice President, Global Health Care Policy and External Affairs. “At CSL Behring, we have a long-standing history of commitment to the bleeding disorders community and the patient has always been our north star. We look forward to continuing our shared mission and delivering on our promise to advance care for people living with bleeding disorders.”