In order to qualify, a local organization must be:

• a recognized patient advocacy organization representing individuals who use plasma/recombinant therapies to treat bleeding disorders, immune disorders, Alpha 1 deficiency, Hereditary Angioedema, CIDP or other conditions
• a non-profit organization with a 501(c)(3) tax status
• an organization currently addressing a specific advocacy issue or intending to address such an issue

Examples of advocacy issues for a LEAD Grant:

• Creative advocacy endeavors designed to address a local public policy issue or to positively impact users of plasma-derived and recombinant therapies
• The pursuit of standard-of-care or quality-of-care legislation or regulations for plasma-derived therapies and their recombinant alternatives
• Efforts to defeat or overturn restrictive formulary proposals by a state Medicaid or an insurer
• The pursuit of legislation or regulations that will increase access for individuals to obtain their plasma-derived or recombinant therapy
• The creation of a grassroots program/database to lobby the state legislature

Complete and submit the grant application request form. Applications will be judged on the merits of the proposal and the advocacy issue being addressed. The U.S. window for submitting LEAD Grant proposals is open from October 1 to October 31 of each year, with recipients being announced in December.

If you would like to learn more, please contact advocacy@cslbehring.com.

LEAD Grant Application Form - US Or Download this PDF

Submit completed applications electronically by the deadline of October 31 to: advocacy@cslbehring.com

or mail

CSL Behring
Attn: LEAD Grant Committee
1020 First Avenue
King of Prussia, PA 19406
Phone: 610-878-4000

In order to be considered for a LEAD Grant award, your application must be received by the deadline noted above. Grant recipients will be announced in December

Please answer the following questions and provide as much detail as possible describing the opportunity for LEAD Grant funding. Please feel free to submit any supporting documentation that would be helpful to explain the proposal :

1. What advocacy issue would the LEAD Grant address?

2. What is the desired impact resulting from addressing this issue?

3. Please describe the time frame for implementing the project, including key milestones.

4. What is your overall projected budget for this advocacy initiative?

All grantees will be required to submit a progress report six months from receipt of funding on activities and achievements to-date.

Any additional relevant information or support material may be included with the application. If this application is being submitted on behalf of a coalition or council, please include letters of support from coalition or council members.

• Colorado Chapter of the National Hemophilia Foundation
• Danny's Dose Alliance
• US Hereditary Angioedema Association (HAEA)
• Hemophilia Association of Minnesota/Dakotas
• New England Bleeding Disorders Advocacy Coalition
• Ohio Bleeding Disorders Council

In order to qualify, a local organisation must be:

• a recognised patient advocacy organisation representing individuals advocating for access to plasma/recombinant therapies and other innovative therapies to treat bleeding disorders, immune disorders, Alpha 1 deficiency, Hereditary Angioedema, or Sickle Cell disease
• a non-profit organisation
• an organisation currently addressing a specific advocacy issue or intending to address such an issue

Examples of advocacy issues for a LEAD Grant:

• Creative advocacy endeavors designed to address a local public policy issue or to positively impact users of plasma-derived, recombinant or other innovative therapies
• The pursuit of standard-of-care or quality-of-care legislation or regulations for plasma-derived therapies, their recombinant alternatives or other innovative therapies
• The pursuit of legislation or regulations that will increase early diagnosis and access for patients to obtain their plasma-derived, recombinant or other innovative therapy
• The creation of a grassroots program to influence local legislation

Complete and submit the grant application request form. Applications will be judged on the merits of the proposal and the advocacy issue being addressed. The European window for submitting LEAD Grant proposals is open from 13 January to 24 February 2025, with recipients being announced in April.

If you would like to learn more, please contact EUadvocacy@cslbehring.com.

LEAD Grant Application Online Form - Europe OR Download this PDF

Submit completed applications electronically by the deadline of 24 February 2025 to: EUadvocacy@cslbehring.com

In order to be considered for a European LEAD Grant award, your application must be received by the deadline noted above. Grant recipients will be announced in April 2025.

Please answer the following questions and provide as much detail as possible describing the opportunity for European LEAD Grant funding. Please feel free to submit any supporting documentation that would be helpful to explain the proposal:

1. What advocacy issue would the European LEAD Grant address?

2. What is the desired impact resulting from addressing this issue?

3. Please describe the time frame for implementing the project, including key milestones.

4. What is your overall projected budget for this advocacy initiative?

All grantees will be required to submit a progress report six months from receipt of funding on activities and achievements to-date.

Any additional relevant information or support material may be included with the application.