CSL Behring Makes a Rare Impact

The National Organization for Rare Disorders will honor CSL Behring with a Rare Impact Award in May.

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Reimagining Rare Together - Rare Impact Awards from the National Organization for Rare Disorders May 4-6, 2023

CSL Behring will be among the honorees at the 2023 Rare Impact Awards given by the National Organization for Rare Disorders (NORD).

The award recognizes CSL Behring for a gene therapy that recently received approval in both the United States and Europe.

Other winners include Abbey S. Meyers, PhD, who founded NORD in 1983; former Yankee centerfielder Bernie Williams, an advocate and champion for those who have idiopathic pulmonary fibrosis; former U.S. Rep. Jaime Herrera Beutler of Washington State whose daughter was born with bilateral renal agenesis; and geneticist Dr. Ada Hamosh who developed a web-based tool for the collection, storage and analysis of standardized phenotype and genotype data.

The Rare Impact Awards on May 4 will be held at the Smithsonian National Portrait Gallery in Washington, D.C., and will be part of NORD’s 40th anniversary celebration.

Rare Impact award winners are “rare disease champions who will be honored for their outstanding contributions to the rare disease community,” NORD said in a news release. “Each of the honorees have made significant and unique contributions that have helped advance rare disease care, advocacy and research in recent years of NORD’s 40-year history.”